Tuesday, 19 March 2013

Autism and Evidence 5: 15 criticisms of ABA and some responses

 15 criticisms of Applied Behavioural Analysis approaches

For many years now, I have heard several criticisms of the use of ABA approaches to working with children and young people with autism. The typical response from supporters of ABA approaches is to say that these criticisms are ill-informed, incorrect, or relate to the vested interests of the proponents of other approaches who cannot identify strong evidence for their own interventions. In this blog, my aim is instead to take each criticism (gathered from a number of sources – special thanks to those who contributed to the list!) and provide a perspective on them. The reason for taking this approach is that criticisms may well have come from people’s direct bad experiences, or from secondhand reports of poor practice. Thus, these points do have to be addressed.

I need to make several points before I begin:

·      I am no spokesperson for ABA. I do hope that I understand the ABA field to some extent but also much more broadly autism, intellectual disability, families, and education. Thus, I am trying to use all of these perspectives to reflect on common criticisms of ABA. However, it is in no sense an “official” response.
·      I am also not writing this for experts in ABA, although I do hope that ABA practitioners will find my observations helpful. In any case, I will not attempt to be technically accurate at all points. Instead, I am trying to explain things for a wider audience.
·      Several of the criticisms that I will deal with below are more generally about poor practice and are not specific to ABA. Thus, there is certainly a need to improve the quality of practice across the board when it comes to working with children and young people with autism.
·      Many relevant points have already been addressed in earlier blogs of mine. I will do my best to refer back to those blogs at appropriate points – so that people can read a fuller treatment of the issues. However, I would encourage everyone to read the whole series of blogs on autism and evidence.

1.         ABA has a “normalizing” agenda

The criticisms here focus on a number of related points. The first is that ABA approaches are focused on taking away something of the child’s autism – trying to make the child “normal” in some way. Critics argue that this also leads to proponents of ABA approaches trying to convince parents and others that they can “cure” a child of autism, or more generally that “ABA can lead to recovery” from autism. A second area of criticism is that ABA focuses on reducing/removing behaviours that cause no harm for the child and in fact are functional for them (especially stimulatory behaviours – “stims”).

Some discussion of this issue can be found in two of my previous blogs, so please take a look at those first:


In summary, ABA approaches in autism do not “decide” which behaviours to focus on in terms of developing new skills or reducing existing problematic behaviours. Multiple perspectives are used to identify targets for intervention including the child, their family, teachers etc. Ethically speaking, behaviours ought to be the target for reduction only when suitable alternatives are available for children (and these may have to be taught), and when the behaviour in question is clearly interfering with an aspect of the child or family’s experience of quality of life. Sometimes, “stims” may be targeted for reduction for these reasons, but there is no prescription to do so as a part of an ABA programme.

When it comes to a broader normalizing agenda, this is an issue that is not specific to ABA. In fact, educationally focused interventions in general ought to be about making a positive difference and not succumbing to a medical model agenda of cure or recovery.

That said, unfortunately, it is true that some proponents of ABA sell their services on the basis that recovery “is possible”. Thus, many people may have heard these qualified promises, or perhaps stronger promises made. However, proponents of many other interventions in autism also make similar (sometimes much stronger) claims. The fact is that many interventions exist within a marketplace where they are trying to attract attention of parents as “consumers”. Until autism organizations and government bodies recommend (and fund) only interventions with a clearly demonstrated evidence base, this marketplace will continue to function.

An important point to make is that just because some individuals or organizations argue that ABA can lead to some sort of recovery from autism does not mean that this is what ABA is all about.

2.         Children fail to generalize skills

Under this general heading of criticisms are perhaps two related points. First, children become dependent on one-to-one teaching, or learning in particular contexts only. Second, one-to-one teaching does not encourage independence.

A defining feature of interventions that can be called Applied Behavioural Analysis is that they directly address generalization of learning (to new teachers, settings, and skills) and also the maintenance of newly acquired skills in the child’s typical environment. It can be hard to establish generalization for children with autism whatever intervention approach you chose. However, ABA includes a variety of methods and perspectives to directly teach generalization of skills. If a child on an ABA intervention has not yet generalized their new skills, the programme or intervention is not yet completed.

I can imagine that people will have seen children reported to be on ABA programmes who are currently failing to generalize their skills. However, this is most likely a feature either of where the child has got to (generalization is still being worked on), or perhaps a reflection of the lack of competence/experience in their intervention team. In neither case is the failure to generalize an inherent feature of ABA.

In fact, quite the opposite. ABA approaches explicitly recognize the need to teach and establish generalization, and (unlike many other intervention approaches) practitioners have worked for many years to establish methods of teaching to maximize generalization. Some of these methods will still rely on one-to-one teaching. It is not one-to-one teaching that causes problems in terms of generalization, but the failure to properly plan for and teach generalization causes generalization problems!

3.         ABA is adult led

I think this criticism focuses on the experience of ABA programmes for children with autism where a teacher (therapist, tutor) presents as many learning opportunities to the child as possible. Although an adult will also incorporate natural learning opportunities (see below), the adult can perhaps be seen as the main active participant in the intervention. My understanding of this criticism is also that the implication is that this active involvement of an adult teacher is somehow “bad”. So, perhaps one reflection on this criticism is to ask why that might be a bad thing. The alternative might be to offer very little by way of teaching support to children with autism who may just not interact with other people much at all.

A more positive perspective is to clarify that ABA interventions are very clearly child focused and individualized. Thus, initial targets for intervention are defined by young people themselves, their families/carers/advocates, and the expectations of society. Delivery of an ABA programme also focuses on the hour-by-hour collection of data about the child’s learning. Thus, bespoke evaluation is used. In addition, reinforcers (in common language often called “rewards” – also see below) are chosen for the fact that they can be used to motivate an individual child (through a formal process of reinforcer assessment). Also, ABA programmes begin with a very detailed individual assessment of the child’s strengths and weaknesses that informs what should be taught first and what might follow once foundational skills are established.

So, depending on what critics mean by “adult led” perhaps ABA interventions can be described in this way. However, they are also child centred and individualized at multiple levels.

4.         ABA is rigid and reduces the opportunity to respond naturally to spontaneous initiations and interactions with the child

This may lead on from the previous criticism about being adult led. Any high quality ABA programme will, however, incorporate learning opportunities within the typical environment. Some approaches major on this approach – natural environment teaching/training is a widely applied method. All high quality ABA programmes will also take advantage of learning opportunities outside of formal teaching sessions. This is one reason why family members are often encouraged to be involved in a child’s programme – so that they can help with the maintenance of the child’s learning within their day-to-day environment.

Perhaps the error is to focus only on one part of ABA intervention approaches – the more formal and typically table-top delivered Discrete Trial Training method. For me, DTT is about direct teaching of new skills that are practiced so that the child becomes fluent in the skill within the teaching environment. Next steps are obviously to extend these new skills to other settings and to ensure that the skills can be maintained in the child’s everyday environment (generalization and maintenance again). Unless a child becomes fluent in a skill, it is hard to achieve long lasting intervention effects. This is an error in some other intervention approaches where it is not clear if a child truly masters a skill, and the likelihood of successful generalization and maintenance is likely reduced.

So, perhaps DTT might look “rigid” to an outside observer not looking at the whole context of a child’s programme. I would also be concerned if a child’s programme only consisted of DTT because it seems unlikely that proper attention is being paid to generalization and maintenance of skills. Thus, “rigidity” may be serving an important purpose within ABA programmes, but ongoing reliance on DTT especially later on in a child’s programme MAY be an indication of poor practice. Thus, ABA isn’t rigid but it may be applied in lower quality programmes in a more rigid manner.

5.         Reliance on “external rewards”

There is a collection of criticisms that seem to me to focus on the idea that ABA interventions somehow force a child to learn. Children are offered “rewards” to perform/behave in certain ways and so this is not real learning – the children are not learning real skills. A related criticism is that ABA interventions make the child too reliant on the structure of the intervention and so they do not learn to occupy themselves.

These points touch on the motivation to learn. I cannot see how a child can be forced to learn. It is certainly the case that skilled ABA practitioners are very good at motivating a child to engage with learning. The reason that reinforcers are applied in the context of ABA interventions is because basic research on learning demonstrates that we learn through the gradual shaping through reinforcement of successful ways of behaving. New skills, once learned to a fluent level, “self-maintain” because they lead to success in the child’s environment. The whole process of generalization and maintenance (see above) is all about “real” learning and long term change in behaviour.

Why do children with autism often have to be taught using “rewards” delivered reliably by a teacher in the context of the intervention programme? Because they have often failed to learn key skills by other means. Therefore, they need to be taught these skills. The way to teach new skills is by the behavioural teaching methods used in ABA interventions.

An important outcome of any intervention, and ABA is no exception, is that a child develops learning-to-learn skills. These skills can be taught like any other. They might be examples of what ABA folk sometimes call pivotal skills or behavioural cusps – skills that once learned open access to other learning reliant on these building block skills. In addition, children can be taught self-management skills. They can monitor/record their own learning and make adjustments to their approach to learning based on this information.

6.         Lack of focus on sensory issues

Some experts in the field of autism adhere to a position that sensory sensitivities are a core feature of autism. In the new DSM definition of autism, such sensory issues are to be more centrally represented. The implication seems to be that any intervention for children with autism should include a piece that states clearly how sensory issues are addressed.

Sensory issues ARE special in ABA intervention but at a very individual level – there is no one set of intervention supports that would be thought of as the “sensory bits”. First, sensitivities to sensory information need to be understood to be able to plan for how best to teach an individual child. Second, certain sensory stimuli may have unusually aversive properties for a child with autism. This would also be discovered in the context of a reinforcer assessment (how best to motivate the child to learn, and by implication how not to motivate them!). Third, on some occasions a child or young person may seek help to tolerate sensory experiences that they struggle with in the service of a higher level goal. For example, working in the film and television business may require tolerance to bright lights. ABA methods can often be used to enable children and young people with autism to develop tolerance to self-manage their sensory sensitivities. Complete avoidance is often not an option for those who wish for inclusion in society and independent living.

7.         The speech children produce when on an ABA programme isn’t “real”

This criticism is that ABA practitioners do not work on the precursors to language skills first when they teach children to speak. However, my understanding would be that any good quality ABA intervention would be developmentally informed. A good understanding of typical development is needed to inform which skills to teach in steps towards a more complex skill and in what order these steps should be taught. The most important issue is also that language is functional – that the child can use it to obtain what they want to obtain. Thus, the real test of whether good skills have been taught is whether they work in the child’s environment.

Speech production itself is also probably a good example of an area of knowledge where other professionals are expert and could be collaborating with those who know best how to teach children complex skills (ABA practitioners).

8.         ABA is a one size fits all approach

ABA is a child centred and individualized approach as described at several points in generating answers to other common criticisms, and in my earlier blogs. What is taught and how this is done, will vary depending on the child’s strengths and weaknesses, theirs and their parents’ wishes, and how quickly they learn the skills.

In thinking about this criticism, which just doesn’t make sense to me given my opening comments, I suspect that it may come from seeing practitioners at work who aren’t yet experts. In all areas of practice, experts are those so fluent in an intervention approach that they know the theory and practice inside out and can problem solve quickly and effectively as they go along. Thus, they are very good at responding to individual variations and creating new ways of supporting individuals where the intervention isn’t quite working. This is no different for ABA practitioners. Early on in people’s development, there is likely to be a reliance on using manualised approaches and perhaps ABA programmes may look quite similar across different children. Things will look very different when you watch a real expert at work.

Again, my point is that “one size fits all” is not a feature of ABA intervention per se. Rather, it is perhaps an indication of inexpert delivery of any intervention approach. At heart, ABA is much more of an individualized approach to intervention.

9.         Use of punishment

Several critics point to the use of punishment in ABA programmes historically and also very rare cases internationally of services calling themselves ABA and using electric shock, amongst other things.

Punishment is not a process that leads to the learning of new behaviour, but it can be used to stop children engaging in challenging behaviours that may be dangerous to themselves or others. The use of punishment is outlawed or very heavily restricted in codes of ethics and professional practice in the field of ABA generally (as it is by all professional bodies) and so also in ABA interventions applied to children with autism.

ABA practitioners are also trained to a much higher level than other practitioners to recognize and understand punishment so that they can avoid its unethical application. This is actually quite a technical point. What most people mean when they talk about punishment is either degrading practices (which must be outlawed on an ethical basis), or things that many people find aversive. Punishment in ABA is different in the second respect because what is aversive is known to be very individual (just like the things that positively motivate each child). In addition, “punishers” are defined by their effects on behaviour. Most typically, if something happens after a child’s behaviour that leads to that behaviour being less likely to occur in similar situations in future, that “something” is acting as a punisher.

In summary, modern ABA programmes and practitioners do not use punishment. Practices agreed to be degrading are outlawed. At the same time, ABA practitioners have a clearly developed understanding of what punishment actually is and how individual it is. Thus, they should be less likely than other practitioners to punish a child’s behaviour. Without a nuanced understanding of punishment, other practitioners may be inadvertently punishing a child’s behaviour. This is a potentially serious issue in practice.

10.         Lack of professionalism amongst ABA practitioners

For me, this is an area again where a category error is being made by critics. Thus, behaviour that may be considered less than professional that they might observe in some ABA practitioners is somehow attributed to the approach per se rather than to the individuals concerned, or the system in which they work. Common criticisms include that the qualifications of ABA staff are not clear, little attention is paid (in the UK) to the National Curriculum, and ABA staff will not collaborate with other professionals in school settings.

Putting it very simply, ABA interventions do not require practitioners to be unprofessional.

That said, there are very important questions to be asked about how ABA interventions should be best governed at least within the UK education system. Because local education authorities have typically failed to invest in ABA-based services, the ABA interventions that they have funded have historically been as a result of parental demand and even parents seeking legal redress to get funding for their child’s ABA programme. Thus, education authorities have been reactive rather than proactive. This means that the staff with the ABA skills are often outside of the system. And, Yes, this can mean that people are employed to work on ABA programmes who lack a broader professional training (despite the fact that they may be very good at directly teaching children).

My argument would be that the UK education system must properly engage with ABA practice and work out how to make the benefits available to as many children with autism (and other special educational needs) as possible. The ABA community in the UK has carried out a piece of collaborative work to address professional standards including clarity about the range of competencies that high quality practitioners should be able to demonstrate. The UK ABA Autism Competencies Project focused on ABA competencies but also competencies relating to autism, working professionally, and working within the four countries of the UK in the education system (including the context of the National Curriculum).

My message to local authorities – stop using perceived lack of professionalism in ABA as an excuse for ignoring its benefits. Instead, engage with the ABA practice community.

Follow this link to the competencies framework for a free download of the full information:
http://www.ambitiousaboutautism.org.uk/page/what_we_do/research/aba_competencies.cfm

11.          ABA programmes can be never-ending, and the long term benefits of ABA are not clear

Never ending ABA programmes is a criticism that probably deserves a separate discussion. In fact this is quite an interesting issue. The first is that this criticism often comes from local education authorities in the UK who typically fund the interventions. It is not clear why they haven’t got appropriate governance in place to prevent extended early intervention programmes from running. From families’ perspectives I can see why they would want to extend funded intervention time for as long as they can. There may also be confusion about what ABA intervention actually is (see http://profhastings.blogspot.co.uk/2012/12/autism-evidence-3-what-is-aba-for.html). Many people confuse Early Intensive Behavioural Intervention with ABA more generally. My own position is that running an EIBI model beyond early childhood (i.e., when intervention would be “early”) is not appropriate, but ongoing use of ABA teaching methods throughout life for a person with autism is a very good idea.

Evidence-based support shouldn’t end just because young people with autism move beyond early childhood. However, I can also see that an unchanging ABA programme in adolescence that still looks like the intervention the child was receiving at 3-4 years of age is unlikely to be sensible.

In terms of long term benefits, it is the case that long term follow-up of children who received ABA early intervention has not yet been the subject of significant research effort. Thus, in that sense the long term outcomes of EIBI as an early intervention are unknown. However, again, this is not unique to ABA intervention. There are no significant similar data either for other autism interventions. There is, however, international consensus about the value of early intervention in autism and the notion of intervening early for longer term impact on quality of life.

If this “long term benefits” criticism relates to the value (or otherwise) of extended ABA intervention, this point has been addressed above already.

12.         ABA is very American and doesn’t work for the UK education system

Both of the major UK-based evaluation studies that I’ve been involved in as a researcher have been carried out within the UK education system and in collaboration with local education authorities. In SCAmP, we worked with 11 education authorities in Southern England to deliver and evaluate a home-based EIBI model (Remington et al., 2007). In the Westwood School project, we worked with two education authorities in North Wales and delivered and evaluated an early years school based ABA model integrated into a mainstream school (Grindle et al., 2012).

Both studies reported positive results for the children with autism who received the intervention. We certainly did have to work hard to develop a model that used the best of ABA intervention evidence and delivered this appropriately within the UK education system. However, all of the many people involved (children, parents, teachers, education administrators, ABA practitioners, other professionals, researchers) worked together to deliver the positive outcomes. It can be done in the UK.

13.         ABA is too intensive and expensive

As I have mentioned before in this blog series, I do not believe that ABA comes with a prescription for intensity. International consensus, not “ABA”, suggests that early intervention for autism should be intensive. There are some indications that intensity of ABA intervention is associated with outcome. However, intensity only explains a small amount of the variability in outcome in EIBI. There are likely to be several other factors in play.

ABA practitioners strive to deliver the best quality that they can with the resources available. Resourcing decisions are ones that are made by education authorities and other official bodies.

Those points made, there are several examples of evaluation studies in the research literature (e.g., Eldevik et al., 2012) suggesting that ABA interventions produce better outcomes than eclectic special education funded at the same level of cost. It seems that you can spend the same amount of money and still get better outcomes.

14.         ABA is hard on family life and family members

I am always interested to hear this criticism since our research group has been one of the few worldwide to carry out research on this question. It is often assumed that an intensive home-based intervention programme may be stressful for parents and other children in the family. This assumption is unlikely to apply to ABA programmes run primarily in school settings away from the home. However, even in the home context the research data do not support the anecdotal assumptions. Stress did not increase over time in parents whose children received EIBI in the family home (Remington et al., 2007), parents of children with autism on home programmes and siblings do not seem to have elevated levels of psychological problems compared to other parents/siblings (Hastings & Johnson, 2001; Hastings, 2003), and although parents did report that the intervention can be stressful they would do it all again and strongly recommend ABA to other families (Grindle et al., 2009).

15.         ABA is only for the “severe” children

A final criticism that I will address at this point is one that ABA might be useful only for those with severe autism and/or who have significant challenging behaviours. Higher functioning children do not need ABA.

By this point, I should ask you the reader to generate your own answer to this criticism. My view is that again we are probably dealing here with a mis-understanding about what ABA is. ABA teaching technologies are for all children and young people – nothing to do with autism, and certainly nothing to do with the severity of autism. Most children at some stage will require some additional support to develop a new skill, manage problematic behaviour, or extend their skills in an area where they are already expert. The evidence-based way to teach children when they need this assistance is to use methods informed by our understanding of learning theory. Perhaps this criticism is linked to a mis-understanding that EIBI is the only ABA intervention. I can certainly see that perhaps children with the highest levels of need are the ones who may need a comprehensive early intervention programme – teaching them across multiple skills domains. Children and young people with more specific needs would still benefit from a focused ABA intervention dealing with a particular domain of skill development (e.g., reading, numeracy, social skills, managing anxiety).

Thank you for reading, and sorry this ended up being so long – there was a lot to say!!


References to research studies mentioned above

Eldevik, S., Hastings, R. P., Jahr, E., & Hughes, J. C. (2012). Outcomes of behavioral intervention for children with Autism in mainstream pre-school settings. Journal of Autism and Developmental Disorders, 42, 210-220.
Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B. (2009). Parents’ experiences of home-based Applied Behavior Analysis programs for young children with autism. Journal of Autism and Developmental Disorders, 39, 42-56.
Grindle, C. F., Hastings, R. P., Saville, M., Hughes, J. C., Huxley, K., Kovshoff, H., Griffith, G. M., Walker-Jones, E., Devonshire, K., & Remington, B. (2012). Outcomes of a behavioral education model for children with autism in a
mainstream school setting. Behavior Modification, 36, 298-319.
Hastings, R. P. (2003). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141-150.
Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327-336.
Remington, B., Hastings, R. P., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., Alsford, P., Lemaic, M., & Ward, N. J. (2007). Early Intensive Behavioral Intervention: Outcomes for children with Autism and their parents after two years. American Journal on Mental Retardation, 112, 418-438.

30 comments:

  1. Christine Mahony20 March 2013 at 15:13

    This is a great blog and covers much of what I've heard from those negative towards ABA-based interventions. I've passed it on to several friends and acquaintances - but how do we get the people who really need to read it, to read it?

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  2. Thanks Christine. This is now in the public domain for anyone to use/read, so please do just encourage folks to take a look! I don't expect everyone (or anyone?) to agree with my views, but hope this prompts some more understanding I guess.

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  3. I hope that this gets out into the public domain via parents sending it to LAs or even producing it at tribunals.

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  4. Please, if this is useful to anyone, just use it!

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  5. This is such informative common sense. You have discussed the points which I hear from people who are ignorant of what ABA actually is. The education authorities in Scotland are particularly ill informed. It would be very helpful if teachers and other professionals working with our children would take the time to read your arguements and at least engadge in some debate. I feel particularly strongly that until the education authorities become involved and incorporate ABA under their jurisdiction, issues around quality and delivery will continue to be a problem.

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  6. Thank you. I do think it is about everyone engaging in these discussions. So, although there is surely mis-understanding out there, proponents of ABA are also not good at communicating sometimes and also sometimes talk as if all ABA practice is perfect. Given they're all human too, this seems unlikely!

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  7. Honestly, this just came off as just a professional defending an indefensible profession.
    I trust the autistic people who have endured ABA. I trust them, and I trust their experiences. When I say ABA, they say PTSD.

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  8. I thought that I had been hard on proponents as well as critics of ABA, but not everyone clearly agrees that I have been. The most important point we can agree on though is that poor and potentially abusive practice has very likely gone on. My point is that it is people, not approaches or theoretical positions, that abuse other people. Abusive and poor practice is found unfortunately, but this is independent of what people say their theoretical position is.

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  9. I have to say that I persoanlly think this article is a very well balanced and objective address of the many assumptions and concerns out there. Addressing, discussing and applying measured context to these concerns is a very valuable thing to do; for parents looking at ABA programmes it gives them the ability to better understand the concerns which are often associated with ABA programmes, and more importantly empowers them contexualise those concerns when and if searching for a credible, well run programme. Citing individual experiences -- whether those experiences are positive or adverse -- and then applying them broadly across the board to ABA programmes as a whole is worrying. I think ProfHastings does a very good and valiable job here in this regard.

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  10. My problem with ABA is that I have been constantly told that there is so much scientific evidence supporting its use. However, when I ask to be shown the evidence to support the use of ABA I am presented with a bunch of case studies and small N types of studies that can not be generalized. I even got one researcher admit that they hide cases where ABA has not been shown to work. What the research I am reading is telling me is that ABA can work in some cases but it does not tell me when it is not successful. I beleive it is just as important to publish studies on cases where ABA is not successful. One question I have is for every study published that shows that ABA is successful how many studies that failed to show its success were not published? In order for me to make the best decision for my child I need all of the evidence both positive and negative and not just the information that researchers choose for me to see that supports their agenda.

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  12. #1 I may not have read this properly or understood it properly, but fail to se discussion of some of the most important issues in this text.

    And I see a lot of claims - not substantiated. for instance you simply claim: "ABA practitioners are also trained to a much higher level than other practitioners to recognize and understand punishment..."... now that is simply a claim. Not remotely a truth or anything like that... It is simply your opinion. And one which you obviously are allowed to have. None the less it is a mere opinion.

    And while we're on the matter of punishment, or "aversives" as this is coined inside the practice of ABA... An aversive, does not simply stop being such, just because ABA practitioners decide it is not one. To take possession of a childs wants, as a means to making the child comply, and only give the child acces to his wants, can very well be percieved as punishment/aversive.

    Let us take an example. Child craves mothers love. Now mother is tired of childs behavior, which she on a completely normative level decides to be "undesired behavior" or let us say for fun: "disruptive behavior" - she now decides she will only give love to her child when child is compliant according to mothers normative concept og non-disruptive behavior.

    This kind of treatment would in most modern educated cultures be seen as on the verge of abuse, or neglect, and certainly as very ill informed. You do not emotionally blackmail a child to achieve what you want from it, do you? Would you under normal circumstances consider this a healthy and well thought way to bring up a child... To bring that kind of trade off into a relation build on trust and reciprocity?

    But when you have a particularly vulnerable child, say a child with autism - or ADHD, suddenly a tradeoff of this kind is not abusive, it is not neglect, and not ill informed, or even unconsidered - now it is "treatment"?

    What you think of at "reinforcement" may very well be considered abusive if suddenly it is completely denied beyond the realm of complete compliant behavior.

    Another problem with ABA, is its normative component. All treatments are basically normative, culturally, contextually etc - nothing weird or strange about that. But it IS very strange that ABA does not in its litteratur consider the implications of this. That means that all though the effects are somewhat precisely measured - and are evident (even if not as much as is often claimed it is nonetheless probably the most evidence based practice) - the whole basis for ABA is not tested at all. It is simply a subjective, kontextual, normatively based approach, which means that beyond discussing its impact - it is clearly a normative choice whether one likes the approach or not. That is not beyond "opinion" as ABAs basis - radical behaviorism - is not beyond opinion. You can choose it or not choose it. Choice at this point is not a question of "any given measurable effect" but of what one actually can relate to. And another problem with the whole normative basis for ABA obviously is: how do you ensure that issues dealt with in the individually planned treatments are actually healthy - wanted - needed and not simply conforming a person to compliance? How can a behavior be deemed problematic/not problematic, healthy/unhealthy, disruptive/wanted - without even investigating the motives of the behavior beyond the categories of "negative reinforcement", "positive reinforcement", or "automated reinforcement"...

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    1. thank you for your questions. First, no-one should be suggesting making parental love contingent on desried behaviour as you use as a potential example. Second, as I try to point out, any outcomes worked towards must be those identified by the people involved. ABA doesn't value any one thing above another.

      As for unsubstantiated claims, this is not a scientific piece with references but a blog indicating my views. The object of ABA is not about getting a child to comply.

      Just because some folks offer critical comments or present ABA in certain ways also does not make their points true...

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    2. Hi - thank you for answering - and so swiftly - maybe like me - you should be working right now?

      The usual way of showing and giving parental love was an example of something a child would typically enjoy... but also something which only few children with autism enjoy. Therefore what you do in ABA, is you take the things that they DO enjoy and (ab)use them to get the child to comply. The implication of the example being, that for at child very very connected to finding it soothing to hav access to his favorite toys, to take it away and abuse is to make the child comply is actually establishing af trade off. Exactly the one in my example.

      No it is certainly not true - just because people offer critical comments or present ABA in certain ways... but ABAs fond of litteratur - your above mentioned references - or say Schramms videos on youtube would not be "people offering critical comments" - would it?

      I am not making unbased critical comments and I do not present ABA in "certain ways" ... I simply question the way you, Lovaas, Schramm - aso yourselves present it...

      I do not present it - I question it.

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    3. Regarding the issue of compliance - again it is not my opinion or presentation of ABA - but that of highly regarded practitioners I present, the coin "compliance" is certainly not one I have invented... Just today I overheard this as a wanted result in the videos of Robert Schramm - MA BCAB... (but this is certainly not the only place in the contextual reference of ABA that this is wanted) - other interesting phrases he shared in the video (accessible on youtube - if you want a link say so) - another good one is the aim of absolute comprehensive control (of the childs acces to ANYTHING he might want - or need - since we cannot say on the basis of radical behaviorism).

      Oh and no - it is not at piece of science - I get that - but claiming that ABA practitioners are better educated than other practitioners is quite an extraordinary claim to make, even if it is not in a scientific piece. In my opinion that is.

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  13. # 2 And then there is the question of informed consent. At what age should children be considered involved in choosing? When? At which level of maturity? Is this considered in the ABA litteratur? I have looked for it - the whole matter of "consent" and I have found nothing on it (amongst critics yes - but that is of little interest to me - I would rather know how ABA practitioners relate to that issue - how they operationalize it - in actual practice - everyday... ).

    How is the right of every person to refuse to do something conceptualized in ABA? As I see it it it is coined "non-compliant behavior" and is worked on to extinction.

    Have you by the way ever considered the fact that when you read about ABA, og research on ABA, or watch ABA instruction videos, or engage in conversation with ABA practitioners, that these words are ofte spoken: "control", "compliance", "extinction", "demand", "restrict", "reinforce", "attention", "motivational" (not "motivate" or motivated - but "motivational"), "void of" (reinforcement - escapes etc etc) ... and have you ever considered what terms like these - when relating to educating acutally suggests of the approach and the people concerned with it.

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    1. Consent is legally defined in the country/context in which you are working and ABA practitioners are required in their codes of practice to work to those requirements. In addition, always ABA practitioners must be seeking information about proecedures that they are working with from children and their families - at whatever age and whether or not they are able to speak clearly for themselves (i.e., you have to look for clear signs in their behaviour if children cannot speak for themselves otherwise).

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    2. Exactly - but when I learn about the practice of ABA - behavior of refusal, denial, etc is behavior that is worked to extinction... so which "clear signs" do you more particularly look for? As I do not find the described anywhere in your litteratur - in videos etc... how do you acknowledge it - and who decides?

      In my home country (denmark) there is both legal age of consent - regarding treatment - and there is ethical concerns regarding consent - which do not match that of the legal system. This means we differenciate between ethics and legal issues. This would mostly fall into the ethical considerations.

      And I do not find those ethical discussions regarding issues like this - not in the litterature - could you give me some hints as to where I could read further op on this?

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    3. It isn't how I would describe what any ABA based intervention should be about but I do recognise that others use descriptions I don't agree with.

      I did only claim that those from a good ABA training actually clearly understand what punishment is and are I would argue are uniquely placed to help others see when punishment is happening. This is because they have a functional understanding as punishment. The point is that for an individual some things will act as punishers that society doesn't usually think of in this way.

      I am presenting ABA as I see and understand it not representing how other people like those you mention present it. I don't have to agree with them! Personally I would not be thinking or talking about getting a child to comply.

      It seems to me we might agree on a lot of things. People with autism, families and society need to define what they want to achieve or do. ABA practitioners can then help achieve that. It is not for ABA to say how people should behave.

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    4. I cannot say how greatful I am for your replies - and I fully understand and appreciate when you cannot spend any more of your time answering. BUT... I go on - because I do have many questions and doubts... and I am actually very inquisitive - and critical (but that is my nature and that certainly is not specific for interest in ABA - that regards everything I come into contact with... ) ... And my experience trying to get a conversation about these things with people practicing ABA is exactly the one you write initially in your blog. And I am actually not that badly informed... but I am always told I only question these things because I do not understand ABA.... (blooddy right - other wise I wouldn't ask would I??? - well) - so I am using the opportunity as I have just met it. And your kindness is very unique - and very very appreciated!

      ... So... ok.. I get that you can only present it as you see it - it is a problem with an approach - that it does not have a clearly defined - "this it definately IS and this it definately is NOT"... as I see it. If you take an approach as AI (appreciative... I... ) then you would have some very clearcut answers as to what is and what it isn't - and if someone did ... say ... something in their practice - you would be able to judge quite easily - specfically on the basis of videomaterial aso if what the do is actually appreciative... I mean it isn't that difficult.

      I don't really understand why ABA is so different. Maybe you can help me. I understand that there are poor practitioners everywhere - and I am not talking about that... I mean - methods - goals - values- etc... those must be clearly defined in an approach - otherwise ... how can it be an approach? Am I completely misunderstanding... ?

      And... back to the punishment thing... if "you" do have a functional understanding of punishment, and actually appreciate that things can act as punishers, that society does not usually perceive like that - can you then see my point about absence of enforcement - being perceived as punishment? and why that could be a point of concern?

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    5. Oh and I do read quite a lot - so if you have litterature that you can recommend - on the issues that I try to gain a better understanding of - I would very much appreciate the information. Good books, or good articles on the ethical implications, and considerations, or on paradigmatic implications or controversies, and how these could be handled better etc... there must be such books and articles - but I continuously run into "how to's" - like that of Schramms (and I am not that impressed to be honest).

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  14. # 3 Oh - and then we move on to the next issue. There is no doubt about the need of a highly individualized treatment in autism. Everyone agrees upon that point. So far so good. But then there is the question of what should be solved by the individual and what might actually better be changed in the surroundings... Training to stay in very bright surroundings - as you yourself mentioned in your writing ... hmmm very good - do you also train the blind to see? The deaf to hear? or the lame to walk?

    The responsible practitioner would in such a case mostly educate the "patient" on the matter of perceptual differences in the autistic person. And on the matter, that ignoring this, at training to endure in being overstimulated would most likely lead to longterm unwanted results... amongst others typically things as anxiety issues, stress, in some even PTSD, in some a complete shutdown of sensory related impulses, in some cases also an even hightened alertnes over time - and the stress related further complication of things as allergies, MCS, and other ofte stress provoked complications related to prolonged or enhanced exposure.

    Haven't you ever considered simply teaching them having breaks? using toned lenses/glasses? Wearing af hat - al very simple and ordinary and helpful means of escaping bright lights. And there are many other examples of simple little things that can help immensely - but obviously also require the cooperation of the community. Because if you have different needs, you have to be able to explain this to the people who may react to it. But instead of teaching a person to be a good version of him or herself, you as a practitioner find it ethically sound to teach them to be copies of their surroundings? I find that challenging to say the least! Individualized treatment is a must, but nok all the solutions are in changing the individual - sometimes it is in both the individual and the community. In ABA it is all in changing the person - making them learn to endure - to suffer and cope - because if you can't se it - it isn't there? If you cannot visually confirm a perceptual sensory handicap - then you do not "understand" it? recognize it? or what is the reason you would have that kind of thinking...? I mean - you really seem to think that basic conditions and circumstances in autism simply go away - in training... that is simply ... so wrong. Sorry - but it really is. That is on the verge of ignorance.

    Of course anyone has to be able to endure... but life should be lived - not endured. If you have to do something a lot of the time in your work - where you use endurance - chances are you will as described above suffer the consequences on the long haul...

    I have other questions and problematic issues regarding ABA, but these were some, and I - as described - do not think you adressed them above - at least not sufficiently.
    thanks - I look foreward to a reply.

    Regards Rikke

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    1. I agree with your points. Actually, ABA is all about the environment and the social context - at it is usally the environment or what other people do (i.e., how they behave towards people with autism) that is the target for change. Sometimes, this means changing other people, and sometimes this means giving the person with autism the skills to change other people (e.g., by helping them communicate clearly to others about their experiences and needs). This is very much the whole point - ABA is not about changing the person/taking away their autism in my view.

      Poor practice is poor practice - and there are poor ABA practitioners, but there are also poor practitioners working from other perspectives. Poor practice is not one and the same thing as ABA. Some medical/biological interventions for example have no evidence and physically damage children but this does not mean that all biologically-informed interventions are bad.

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    2. I completely agree - poor practice is poor practice - and that does belong to one specific "venue" but to us all - unfortunately... - but rather naturally.

      It pleases me to read that you differenciate between what is best "changed" where... do you integrate other practices into your work - I mean ... in my practice when designing a plan of treatment for a family - I would typically integrate methods from differing approaches - to reach the set "goals" with the intervention.

      Do you also integrate like that?

      And there is the well known objection with the many hours an approach/science as ABA recommends - how many hours would you recommend... and is it al sceduelled rehearsal - or what is it - is it everything and every minute the child spends being objectified as a "learning experience" measured and planned in minute detail... every "enforcement" (everything the child prefers to play with/spend time doing) being controlled by "treating" surroundings? Or ... what is it like... how many hours planned - how many not planned etc. ? Could you give an impression of this?

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    3. Actually you really suprised me here - I am sorry I realize now that I judged you... an wrongly so... on the basis of your example with the lights. I am sorry.

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  15. ups sorry about the errors I am Danish and sometimes jump into that when typing... it just happens (conditioning I guess ;-)) Sorry though - hope it's not too disrupting to read!

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  16. What I worry about most is that this approach has always been used at the behest of those around the person. It is rarely championed by those on the spectrum themselves, in fact it is pretty much universally vilified by most self advocacy groups and activists. Although you and others such as Lavigna seem to operate from a more humane values base I am afraid that even the most casual research throws up example after example of practitioners bent on 'hammering square pegs into round holes' and grievously damaging those pegs in the process. In common with many leading proponents of ABA you seem completely oblivious to the huge contributions made to the understanding of autism by those on the spectrum themselves. It is strange that neither you nor Lavigna, nor any of your peers ever give a citation from an autistic author. Instead you rely on the conclusions of non autistic researchers and academics. If autism is a way of being', how can pure ' science' hope to open a window on the richness and diversity of perception of which behaviour is but the tip of the iceberg?

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